Wednesday, October 17, 2012

Piece of the Puzzle

Have you ever had a child that was just a puzzle? 

You've tried to make sense of his behavior. 

You have worried. 

You have stressed. 

You have been frustrated.

You have had him tested. 

You have prayed.

I have a child like this. 

TD is my third child, and is now 7 years old. When he was born, he was super quiet--like I forgot he was even there with my other two little ones literally screaming for attention. As soon as he could walk, he would run back and forth in a straight line. He attended a special preschool for speech delay (as have most of my kids--I'm told it's genetic). During that time, he would fight us to wear long pants, long sleeves, or a jacket (which is bad when it's below freezing with 6 inches of snow on the ground and still falling). We deduced that he had Sensory Processing Disorder. 

I read a book. 

Frankly, I think we are all somewhere on that spectrum. 

Then, he stopped having break downs when he had to wear pants or jackets (and then actually did the opposite--he wore his jacket the whole summer). And moved on to more obsessive behaviors. He had to hug and kiss his dad when he left for work, not out of love necessarily, but out of routine. In fact, after this routine was performed, if my husband came back in for something then we had to have a repeat hug and kiss. TD had to have his toys a certain way, always had to sit at the same spot at the table, always had to be first. He even deemed that the head of the table--my husbands place--was 1st, or winning, so he HAD to sit there. 

We ran several tests on him--a Behavioral Assessment, BASC. The form that we filled out showed several spikes; the teachers found him to be normal. We talked to the school psychologist and he said it was anxiety and depression and basically you couldn't do anything until about 3rd grade when you could medicate him. No. Not an option we wanted to pursue. 

I left feeling very hopeless.

I had been dwelling on this for some time, when his teacher came up to me at church (we attended at the same building). She shared some information with me that left me more hopeful and that matched with what I had started thinking. We continued onward and ended up also doing a test for Asperger's, which again was inconclusive. 

You have to understand, even as he has become older, he throws a tantrum whenever, wherever, if things are not going his way. Even at school. In a parking lot. It's unsafe. I don't believe it's our parenting, since out of 6 kids, he's the only one to act in such a manner. Often, when you're talking to him, he stares blankly at you. We have to make him repeat what he's been told and then he might understand what he's supposed to do. He has many quirky behaviors that I have yet to understand (like eating cereal dry--no milk. It looks painful). 

Recently, we had a MAJOR breakthrough/insight. At our elementary school, the students get 'take-home' books that are assigned based on their reading level. I was encouraging him (okay, forcing him) to read his book when he declared, "I don't like made-up stories!" I asked him what he likes to read. "I just like real life stories." Later, while talking to my husband about this, my son added, "I just like learning." 


What 7 year old kid would rather read non-fiction and can tell you that he likes learning? The whole thing floored me, but I knew it was an answer to prayers. 

Light bulb.

A major missing piece to the puzzle. 

Many things about him FINALLY made sense. I have noticed how smart/advanced he is, especially in math (he does simple multiplication in his head--which he hasn't learned yet). I had started thinking that he was gifted (not just in an every-mother-thinks-their-kid's-a-genius way), and thus, perhaps lacking socially. Here's a little illustration of how he thinks from some homework he had last week: 

Seriously, what's not to love about this kid?

I am still working on figuring out how to be the best parent for him and each of my kids, but I know that through Heavenly Father's help and guidance of the Spirit, I can know what, when, and how to best take care of their needs. Truly, He loves each one of us. If we simply ask, He will answer.

© Wendy 2012


  1. The school is wrong about having to wait until third grade. You can go to your local area community counseling center anytime for assistance...any age. Mouse has been in counseling and on med since she was five.

    You don't have to do meds, but group outings might help him to learn to engage more. Mouse used to do group and I think she liked it, but her current therapist thinks it is too busy for her b/c of her PTSD.

    I think it is awesome he's a left brained thinker. So is Mouse. He's controlled by logic and routine. Have you asked about any OT for his sensory processing problems? Mouse has them as well.

    1. I wasn't a big fan of the school psychologist--seemed very doom and gloom. And, again the tests were "inconclusive". Mainly, which I forgot to mention, I do a lot of supplements that help his brain, like Omega Oils, choline, etc. I find that he is more dependent on these at different times. For instance, the last couple of days he has been more whiny, upset if I won't let him on the computer, etc. I hadn't been giving him the supplements--so, we re-grouped and got him what he needed and it is helping. We also have him listen to specially designed music that exercises both the left and right brain so they function the way they need to to be healthy. :)

    2. What a bummer! Our school psychologist is awesome. They are limited in what they can do, but the state still picks up the tab on everything else for the Mouse right now.

      Her med doctor is a big fan of supplementing meds with omega-3, in particular, Canadian fish oil. He says that you can reduce the need for pharmaceutical meds a lot by using it.

      Don't give up. There are practitioners out there who will meet your needs and beliefs on how you want your child treated. It sounds like some more sensory testing might be a good idea. if you can get a clear diagnosis, the school will have to put him on an IEP and provide OT, whether they want to or not.

  2. this seems quite a bit like Kyla, her diagnosis is PDD-NOS. It is a tricky one, that's for sure. I totally believe that we all are at different levels of this same thing. Sometimes, I think I must have the same diagnosis as her. :) It's tough. Does he have OT? Kyla does, she loves it.

    1. No, he doesn't. Would he have to have an official diagnoses for one? Since we switched schools in January, I know the special ed teacher pretty well. I need to give her a call.

  3. I love that boy- you know that. He is a mystery, and bright, and fascinating. Keep me posted on what you are learning.

    1. We need to play soon! But, we've been sick, so let's wait on that a little! :)

  4. I love that boy too! There is so much to learn as parents and that knowledge will be used in other areas of your life. The other kids will learn some valuable things as they interact and observe as well.